A Brief History of stephilepsy

Sick with various joint and muscle pains since the age of 15 (in addition to fevers, headaches, vomiting, and other unpleasantries), I was so ill that I had to complete high school on home tutoring. Don’t cry too hard for me, Argentina, however; I still managed to graduate in the top 10% of my class, despite the second (sixth?) rate education and the stress (oh god, the stress) after which I fought my way through four non-consecutive semesters of college before my body finally gave out. My primary diagnoses have been fibromyalgia and “chronic Lyme Disease” (not only is there no such thing but these treatments are expensive and dangerous — email me if you have questions), in addition to MS, depression, and, my personal favorite, some sort of psychosomatic disorder. That was actually the speciality of the pediatrician (psycosomatic disorders in children — I’ll bet she’s a real hoot at parties and holiday dinners) who made that particular diagnosis, although we didn’t know it at the time.

Who choses something like that for a speciality? Seriously. Although, having said that, I’ll bet she’d make for a fascinating case study herself. I’d just love to listen in on her therapy sessions, wouldn’t you?

Anyway, blah, blah, blah, sick, sicker, sickest, until March 2009 when I had a superior saggital thrombosis which caused additional subdural hemmoraging. Basically, I had a very rare type of stroke (some doctors would argue two strokes) in which a large clot formed in the vein that runs down the center of my brain. This, in turn, caused additional bleeding further down the pipe, as is were, towards the center, and the back of my brain, although it was my left hemisphere that was primarily affected. As it’s a rare kind of stroke, it took the docs at the local hospital some time to figure out what was wrong (the proposition of “explorartory brain surgery” was raised) and even after I was transferred to a major trauma center and underwent surgery to remove to clot and control the bleeding, it was unclear whether I would survive or what shape I would be in if I did.

But I made it!

More or less.

It is, however, fair to say, that the events of the last 16 some-odd years have left me with a great deal of angst.

And now I’m going to take it all out on you!

Sorry.

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Responses

  1. Hey Steph,

    I had no idea that you had such a talent for writing! You are able to share your hard times in posts that throw plenty of humorous and sarcastic jabs.

    Jason


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